NF1

Extra Special Care For Our Youngest Patients

We understand that an NF1 plexiform neurofibroma (PN) diagnosis can be overwhelming for the entire family, and Onco360 is here to help. We provide ongoing, personalized support to make sure the whole family understands the recommended medication, its dosage, and any potential side effects.

What is NF1?1

NF1 is a rare, progressive condition caused by a mutation or flaw in a particular gene. It is usually diagnosed in early childhood, appearing in an estimated 1 out of every 3,000 infants. It’s a disorder that is most commonly characterized by an increased risk of developing noncancerous (benign) and cancerous (malignant) tumors, as well as various other physical and neurological manifestations. It is estimated that up to 50% of patients with NF1 may have at least one plexiform neurofibroma2.

Treatment Options

Previously, the standard treatment for NF1 PN was surgery, but it may not be recommended. Tumors may not be completely removed with surgery, because they may be closely intertwined with critical nerves and major organs. Now, there is another option – KOSELUGO™ (selumetinib). It is the first and only FDA-approved treatment available proven to shrink PN tumors.   

LEARN MORE ABOUT KOSELUGO

Why Choose Onco360?

  • We act as your advocate with your physician, insurance company, and others involved in your treatment.
  • Education about your medication, its dosage, and any potential side effects, along with 24/7 access to our pharmacists.
  • Free overnight shipping via FedEx. If you signed up for our texting program, you will be texted your tracking number before we ship.
  • When it’s time for a refill, we have you covered. We will send you refill reminders and call you to schedule your refill seven days prior to your refill due date. 

If you are a provider, and would like to refer to Onco360, click here to see how to refer.

1https://koselugo.com/understanding-nf1-pn#about-nf1-pn

2https://rarediseases.org/rare-diseases/neurofibromatosis-type-1-nf1/#disease-overview-main

*Third-party survey data provided by MMIT for Independent Specialty Pharmacies (Oncology). Report dates Q3 and Q4 2021.